Patient-Centric Approaches

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Accelerating Rare Disease Trials through Patient-Centric Approaches

Health2 months ago

Source: Accelerating Rare Disease Trials through Patient-Centric Approaches

Rare disease tests face unique challenges due to small patient population, limited data and complex rules. A patient-centered approach changes the research by including patients from testing design to subsequent marketing. It increases recruitment, retention, and data relevance when creating belief and moral integrity. Technologies such as ePRO and partnerships with advocacy groups support this model. Case studies, such as SMA therapy development, show their success. Finally, the patient-centere

pharma focus europe pharmaceutical industry Rare Disease Trials Patient-Centric Approaches rare disease research